"...Who knows what a good thing may happen to a man during his short life that passes by quickly?..."
Dear Sir/Madame,
My name is Maja Kost. I am 4 years old. In the 11th month of my life I fell ill with the disease called metachromatic leucodystrophy. It is a rare disorder causing a loss of my nerves. There is no cure for the disease, but a proper equipment and rehabilitation will let me live. My parents will present my situation in a nutshell.
I would like to ask you so much to find some time to know me better. Just 5 minutes will do...
On behalf of Maja Kost - her mother
The website was made in 08.11.2005